Chapter One ONE On my eighth birthday, the world came to a standstill. My mother''s face became a portrait of pain. My father''s face vanished forever. Two decades have passed since then; my mother died on my twenty-eighth birthday. She is now no more than handfuls of ash in a small glass urn, tucked away in a marble mausoleum. I must have left my white stick in the car, so I am leaning on the arm of Antonia, who has been my constant companion since the day I was born. Others may think I''m blind, but I can see more than they imagine. We are leaving the cemetery behind, with no plans to return.
As Mom often assured me in her final days, she won''t be on her own, but will be with hundreds of thousands of souls, in a plot close to Heather and Fir Avenues, listening day and night to "Blue in Green." The moment has come for me to fend for myself. I know the avenues of the cemetery by heart, the plot numbers, the rows of vaults, and the sculptures of angels with downcast eyes looking like exhausted ballerinas. I''ve visited the century-old Thomas family mausoleum with my mother on more than one occasion. My father rests there too. A decade after his passing, Mom and I began restoring the place, as if she suspected that another death was around the corner. I never knew which of us she was preparing the space for. I was eighteen at the time and hopeful that my dark days were coming to an end.
I was wrong. It''s a short drive from Woodlawn to the home Antonia shares with her husband, Alejo. "You''ll be fine, Leah," she reassures me as she closes the car door. "I''ll see you tomorrow. I love you." The driver continues along the freeway, the Hudson River on the right as we enter Manhattan. In a few minutes, I will be on Morningside Drive, at the limestone entrance of Mont Cenis, the old ivy-covered building where I live. I begin counting the streets, the stoplights, the corners leading to the apartment that is my refuge, my island within an island.
A few minutes before arrival, I order my dinner over the phone. When the car comes to a halt, I thank the driver, take out the folded aluminum white stick, open it, climb the six front steps, and hurry to the elevator. I don''t want to run into any of my neighbors or Connor, the building superintendent. The last thing I want is to hear kind remarks or condolences. That will only upset me. Entering the apartment, I feel a heavy, cold wave of exhaustion wash over me. In the cavernous living room, I open the enormous French doors that lead onto the sliver of a balcony looking out over Morningside Park. The still evening''s distant rumble of thunder reaches my ears.
A breeze ruffles my hair, but to my eyes the leaves on the trees appear motionless, as though they are struggling against some higher force. On the street corner, an old woman with a dog is looking down at the ground; a man is reading on the bench under the bronze streetlamp; the Columbia University security guard stands at attention like a toy soldier in his sentry box. Nothing moves. Overwhelmed by the smell of the first raindrops on dry leaves, I pull the doors closed. On the other side of the glass, the old woman and the man have disappeared; the guard is still there, unmoving. A yellow taxi dissolves in a brief instant. For most people, such images are quickly forgotten. For me--a person with motion blindness, or what doctors call akinetopsia--they stay with me, in my mind, like photographs.
When I was growing up, Mom and I shared a ritual of silence. Neither of us ever raised our voices. We knew each other''s gestures by heart and picked up on the slightest murmur. My mother grew accustomed to talking to me without moving, her body frozen still. The codes of our language were reduced to verbs conjugated as imperatives: sit down, walk, lie down, get up . Those were the orders of the day. Now I sweep the informational leaflets about akinetopsia--a word derived from Greek that used to remind me of a phrase in the Japanese anime I read when I was a kid--into the recycling basket. And the brain scans and magnetic resonance test results and encephalograms.
All gone. When I was a little girl, I imagined the brain was an enormous worm that expanded to create the different lobes. I imagined the occipital lobe, the visual processing center, wrinkled like a raisin, hemmed in by the parietal and frontal lobes. I imagined how my senses of smell and hearing imposed themselves on the other senses, which gradually lost prominence until they almost faded away altogether. This is the legacy of having spent two decades monitored by an enormous magnet that tried to read my mind and work out why I rejected movement. I used to dream that a knight in shining armor would wake me with a kiss, but when I opened my eyes, plagued by static images that hung over me like a veil, I regretted those dreams. I knew my life wasn''t a fairy tale. For months, doctors kept me shut up in a Boston hospital, where they meticulously investigated the way I had begun, against my will, to perceive the world.
My mother''s and Antonia''s voices blended in with those of the doctors. "Her speech is not impaired." "Her sense of smell isn''t either." "The girl can hear." "She lost her sight," Antonia said to Mom. "She can see a little." The only thing my eyes couldn''t capture was movement. At times I thought that everyone around me had died.
In the beginning, the sporadic headaches were like someone drilling into my skull, but then they began to disappear as I grew used to them until one day, I no longer felt them anymore. Antonia kept wondering where the cheerful, vivacious girl that I''d been had gone. In the hospital, the two of them would stand by my bed and talk about me as if I''d also gone deaf. I realized one day that they were whispering. But they did not know that over time, my ears had become more acute and now even the slightest sigh or murmur reached me with the same clarity as elephants perceive the lowest frequencies. I once heard my mom say that my gaze was fading. I began to slowly distance myself from moving figures, those with life, until books became my only friends. I didn''t need anything else.
When I emerged from confinement, my mother dedicated her life to my care, tirelessly taking me to consultations with experts, desperately searching for the decisive act that would snap me out of my dream. They explained to her that I was in a kind of visual coma and made it clear that the brain damage was reversible. One day, perhaps in the not-too-distant future, I might regain the twenty-four images per second that the visual field needs in order to perceive movement. Might. Mom became my teacher and I learned to add, subtract, multiply, and divide complex fractions with surprising speed. She encouraged me to be passionate about the far-off worlds and history I could find in the pages of books. Hoping that I would regain the ability to see movement, she refused to have the city''s school system, or my doctors, label me as disabled. Because she was so devoted to me, and because we knew no one else with my condition, her social circle narrowed.
She was an only child like me, born to older parents. She lost her father when she was only twenty; her mother passed away not long after. "You must have children young," she always told me. "If not, you''ll leave them all alone at a very early age, like my parents did to me." Our neighbors, Mrs. Elman and her companion, Olivia, became our family, and Antonia, who has taken care of me since I was a child, bless her, stayed on as my mother''s ballast. Though they disagreed on much, they were a good team. Antonia filled the apartment with little prayer cards of the Christian martyr St.
Lucy, whose eyes, according to legend, had been gouged out. At night, Antonia would tell me stories about Lucy''s sacrifices and how she became the patron saint of the blind on an Italian island far away from Manhattan. For as long as I can remember, my world has revolved around my mother, Antonia, Dr. Allen, Mrs. Elman, and Olivia. These are the people in my life. As soon as I hear the intercom buzz, I rush to the door to greet the delivery boy. I have no need of the stick as I make my way down the hall, eyes closed.
Opening the door, I wait for him in darkness, surrounded by the smell of sun that always precedes him. The ping of the elevator announces his arrival at my floor, and my heart begins to race. Smiling, I take a deep breath, and when I breathe out again, there he is with my meal--the boy I dream of every night and wait for every evening. He is the boy with the friendly smile and the permanent shadow of stubble, thick eyebrows, long eyelashes, his brow hidden beneath unruly locks of hair he always tidies before meeting me at my door. When he''s in front of my door, I keep my eyes wide open, because I know that if I close them, he will disappear, leaving behind only the aura of sun and sweat he greets me with each day. I want to keep his image. "Miss Leah, here''s your order," he says. Even though I can''t see his lips moving, every one of his words is like a caress.
I stretch out my right hand and he places the bag over my wrist, making sure it doesn''t slip. I can feel his warm fingers linger on my forearm. I mustn''t shut my eyes. If I do, he''ll disappear, like he always does , I tell myself as a gust of air stings my pupils, the need to blink filling my eyes with tears. "Call if you need anything else. Have a good evening," the boy says. I listen to his parting words and hear his voice moving off toward the elevator. Its doors open.