"Dr. Thompson's book provides an excellent resource for parents and caregivers of children afflicted with neuromuscular disease. The chapters focusing on coping skills and navigating the medical maze will be particularly helpful to families as they deal with the complex issues that surround the care of their child."--Andrew G. Engel, M.D."This book is a must-read for parents, grandparents and others who care for children with a neuromuscular disorder. Dr.

Thompson provides the best, up-to-date medical information on these disorders and carefully guides parents through the maze of real-life challenges that arise along the way."--Bobbi Conner, host of the award-winning Parent's Journal Public Radio Series, and author of The Parent's Journal Guide to Raising Great Kids"Dr. Thompson's book provides an excellent resource for parents and caregivers of children afflicted with neuromuscular disease. The chapters focusing on coping skills and navigating the medical maze will be particularly helpful to families as they deal with the complex issues that surround the care of their child."--Andrew G. Engel, M.D."This book is a must-read for parents, grandparents and others who care for children with a neuromuscular disorder.

Dr. Thompson provides the best, up-to-date medical information on these disorders and carefully guides parents through the maze of real-life challenges that arise along the way."--Bobbi Conner, host of the award-winning Parent's Journal Public Radio Series, and author of The Parent's Journal Guide to Raising Great Kids"I have known and admired Dr. Charlotte Thompson for many years and to have read this book has enhanced that admiration. As one who has spent much of a professional lifetime working on neuromuscular disease, I believe that this clear and sensitively written account by a doctor and a mother will be of inestimable benefit to parents and families of children with neuromuscular disorders and to the many healh-care professionals who care for them. Succinctlypresented, refreshingly jargon-free, but never theless accurate and explicit, the book presents information and advice which will be invaluable to many; I commend it warmly."--John Walton, former Professor of Neurology, University of Newcastle-upon-Tyne; former chairman, Muscular Dystrophy Group of GreatBritain and Northern Ireland; former president, World Federation of Neurology"A knowledgeable, sympathetic, and practical guide for both families of children diagnosed with a wide variety of neuromuscular disorders and professionals involved with their care. First-rate help for a devastating problem.

"--Kirkus"Not limiting her book to medical care issues, Thompson provides discussion and resources for further information on almost every conceivable aspect of daily living, from locating a medical equipment vendor to finding the best school program. Highly recommended."--Library Journal.