Introduction: Patients as Policy Actors, by Nancy Tomes and Beatrix Hoffman Part I. Voices of the Silent 1. Solitary Advocates: The Severely Brain Injured and Their Surrogates, by Joseph J. Fins and Jennifer Hersh 2. Physician-Patient Communication in the Care of Vulnerable Populations: The Patient's Voice in Interpersonal Policy, by M. Robin DiMatteo, Kelly B. Haskard-Zolnierek, Summer L. Williams, and Desiree Despues 3.

Is It Time to Push Yet? The Challenges to Advocacy in U.S. Childbirth, by Elizabeth Mitchell Armstrong and Eugene Declercq 4. A Pound of Flesh: Patient Legal Action for Human Research Protections in the Biotech Age, by Lori Andrews and Julie Burger Chronis Part 2. From Individual to Collective 5. From Outsiders to Insiders: The Consumer-Survivor Movement and Its Impact on U.S. Mental Health Policy, by Nancy Tomes 6.

"Don't Scream Alone": The Health Care Activism of Poor Americans in the 1970s, by Beatrix Hoffman 7. The Canary in the Gemeinschaft: Using the Public Voice of Patients to Enhance Health System Performance, by Mark Schlesinger 8. Patient Appeals as Policy Disputes: Individual and Collective Action in Managed Care, by Marc A. Rodwin Part 3. How Patients Matter 9. The Power of Us: A New Approach to Advocacy for Rare Cancers, by Amy Dockser Marcus 10. Patients and the Rise of the Nurse-Practitioner Profession, by Julie Fairman 11. A House on Fire: Newborn Screening, Parents' Advocacy, and the Discourse of Urgency, by Rachel Grob 12.

Measuring Success: Scientific, Institutional, and Cultural Effects on Patient Advocacy, by Steven Epstein Epilogue: Principles for Engaging Patients in U.S. Health Care and Policy, by Rachel Grob and Mark Schlesinger Notes on Contributors Index.