Contents: Introduction And Keynote Papers: Introduction, Deryck Beyleveld, Ségolène Rouillé-Mirza, David Townend and Jessica Wright; An overview of Directive 95/46/EC in relation to medical research, Deryck Beyleveld; The concept of privacy: an analysis of the EU directive on the protection of personal data, Mette Hartlev; Anonymization and pseudonymization: the legal framework at an European level, Carlos María Romeo-Casabona; The scope for exemptions for medical research, Herman Nys; The duty to provide information to the data subject: articles 10 and 11 of Directive 95/46/EC, Deryck Beyleveld; Overriding data subjects' rights in the public interest, David Townend; Genetic information and the data protection directive of the European union, Lasse A. Lehtonen. Report Framework And Comparative Studies: EU, Norway and the NAS law report framework, Deryck Beyleveld and David Townend; Comparative study on the implementation and effect of Directive 95/46/EC on data protection in Europe: general standards, Ségolène Rouillé-Mirza and Jessica Wright; Comparative study on the implementation and effect of Directive 95/46/EC on data protection in Europe: medical research, Ségolène Rouillé-Mirza and Jessica Wright; Index; List of cases.
The Data Protection Directive and Medical Research Across Europe